Bathing in the Sun

Thanks to last week's Moving Up Day I am now the mother of a high school freshman.

I survived the ceremony, all the festivities afterward, went to a graduation party and then to a concert. Since then, I've been reading and not doing much else. When the temperature was over 90, the tuning forks overpowered my arms and legs. It took a few days for the vibrating to subside to a “normal” level, even after the temperature had eased to “normal” summer weather.

What is a “normal” level of symptoms? Darned if I know after nearly twelve years. It's probably why the page is called “Trying to Find My Normal”.

It's sort of like lead levels; while there is no true safe level of lead, there are generally accepted levels. That's kinda how I feel with my symptoms. I may never again feel how I felt before, but maybe I'll still be able to walk.

Summer vacation is upon us, and last summer I wasn't up to doing anything with my kids. Essentially anything that involved walking, outside, and especially walking outside was verboten. I was sidelined by the Copaxone. This year, I feel well enough to at least attempt some outdoor activities. Hopefully, I'll succeed!

A couple of years ago, I made a list of things to do over the summer. Last year, I didn't even look at the list. I already felt guilt and anger (at myself) because I couldn't do anything, so not looking at the list was more self-preservation than anything. This year I'm going to look at the list, and even try to do some things on the list. I feel so much better OFF of the Copaxone. Is the Tecfidera making a difference? I guess I'll find out when I get my MRI later this month. All I know is that the side effects don't sideline me, and to me, that's a victory.

OH! I almost forgot to tell you! My daughter and I decided to try making bath bombs again. We used a different recipe and different molds. The bath bombs were a HUGE and overwhelming success! 

If anyone wants the recipe we used, drop me an email, or comment.