Thursday, July 23, 2015

Medication Shell Game

It's today, it's today, it's today!

The day has finally arrived!! Medication randomization day!! I find out if I get one of two doses of the oral medication, or a self-injectable. I cannot tell you how badly I'm hoping for the oral medication. If I get the oral medication, I'm looking at a six-hour office visit. When you receive the first dose, it's usually in an office or clinical setting because your heart rate sometimes drops. I'm hoping for the six-hour visit because that means I got the oral medicine!! If I don't get the oral medication, it will be a very short visit because I already know how to give myself a shot.

All three medicines are FDA-approved, and have been on the market for some time. Well, I say three medicines, but it's really only 2 different medicines. One is a shot, the other is one of two doses of an oral MS drug. 

I'm bringing my laptop, my phone, a book or two, a puzzle book, water and snacks.

I finally worked up the chutzpah to read the user reviews about the drug. Yes, I read the owner's manual before agreeing to start the process of qualifying for the clinical trial, but I wanted to know what real people thought about it. From what I gather, it's either a miracle drug that can change lives, or it's a creation spawned by Beelzebub himself that can ruin lives. There doesn't seem to be a middle ground.

For now, I have to believe that this will change my life for the better. (Pollyanna has to believe. I, myself, am slightly anxious)

One thing I've seen shared in most of the user comments that I read is that even if it eventually becomes a miracle drug for you, you might feel like you're getting worse instead of better. And the only way to know that you're getting better is to keep taking it until you are better, or you're not better. 

So, there's that. :) 

All that tells me is that this drug is worth trying for me.

It's all so real!!

I'm too antsy to write anything else right now...I'll let you all know how it goes...*

After I take my son to camp, I drop off my daughter at home (my bestest wonderful friend is staying with my daughter until my husband comes home from work), and go to the doctor's office.

"...you've gotta ask yourself one question. 'Do I feel lucky?'..."

*I wrote this post for the original day I was supposed to go to the doctor's office, July 8, 2015., but I've tweaked it to reflect changes that have happened since then.




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